Issue area
Equal access is the law. Make it the practice.
We support full ADA Title I, II, and III enforcement; substantial expansion of Medicaid Home and Community-Based Services; reform of disability income programs that currently penalize work and savings; and an end to subminimum wage authorizations under section 14(c).
Pillars
Where we plant our flag
Enforce the ADA
Substantial federal enforcement capacity for ADA Title II (state and local government) and Title III (public accommodations). The law is on the books; the practice is uneven.
Expand HCBS
Medicaid Home and Community-Based Services are the alternative to institutionalization for hundreds of thousands of disabled Americans. Waiting lists are long; funding is inadequate; the workforce is underpaid.
End subminimum wage
Section 14(c) of the FLSA still allows certain employers to pay disabled workers below the federal minimum wage. Phase it out federally; states are doing the work in the meantime.
Reform SSI and SSDI
Means-testing rules that effectively prohibit savings and marriage. Work-incentive provisions that fail in practice. Asset limits frozen since the 1980s.
Accessible everything
Federal accessibility standards for digital infrastructure, transit, housing, polling places, and healthcare. The default should be accessible; exemptions should be exceptions.
Facts on file
What's actually true
- Roughly 26% of US adults — over 60 million people — have a disability of some kind, by federal definitions.
- Medicaid Home and Community-Based Services waiting lists exceed 700,000 people across 38 states; many people wait 5-10+ years.
- Section 14(c) of the Fair Labor Standards Act still authorizes payment below the federal minimum wage for workers with disabilities; thousands of US employers operate under such certificates.
- SSI asset limits have been frozen at $2,000 for individuals and $3,000 for couples since 1989; not adjusted for inflation, currently equivalent to roughly $1,000 in 1989 dollars.
- Direct care workers (home health aides, personal care assistants) are among the lowest-paid major occupations in the US; turnover and shortages constrain HCBS access.
- ADA Title III settlements have addressed thousands of accessibility violations, but routine violations remain widespread, particularly in digital infrastructure.
- Olmstead v. L.C. (1999) established a federal right to receive services in the most integrated setting appropriate; implementation remains partial.
In context
Read the issue
The Americans with Disabilities Act turned 35 years old in 2025. The civil rights statute’s ambitions remain partly aspirational. Roughly 60 million Americans with disabilities navigate a federal-state-local system in which their rights on paper exceed their access in practice — sometimes substantially. HCBS waiting lists run a decade. Subminimum-wage employment is still legal. SSI’s asset rules have been frozen since 1989. Digital accessibility lags the digital infrastructure most Americans rely on every day.
The five sub-topics below — ADA enforcement, HCBS, subminimum wage, SSI/SSDI, and accessibility — are the load-bearing fights. They share a structural pattern: federal civil rights law that promises something the federal funding and enforcement infrastructure has not consistently delivered. The path forward is partly statutory (SSI Restoration, TCIEA, Disability Integration Act), partly administrative (DOJ enforcement capacity, Medicaid HCBS rate-setting), and partly state-level (subminimum wage phase-outs, HCBS waiver scope).
What unites disability justice work with the broader project is a basic premise: civic participation, economic participation, and the dignity those provide are not contingent on the absence of disability. They are commitments a society chooses to make. The current pattern reflects a society that has made those commitments only partly. The work of completing them is the work of disability justice.
Sub-topics
The conversation, broken down
ADA enforcement
Why a 1990 federal civil rights law is still partly aspirational thirty-five years later.
The Americans with Disabilities Act of 1990 prohibits discrimination on the basis of disability across employment (Title I), state and local government services (Title II), and public accommodations (Title III). The law has produced substantial change. It has also been enforced unevenly. Title I has been narrowed by Supreme Court rulings (most consequentially the 1999 Sutton trilogy and 2002 Toyota v. Williams, partially restored by the 2008 ADA Amendments Act). Title II enforcement against state and local governments depends on Department of Justice capacity, which has been chronically inadequate. Title III enforcement depends on private litigation, since DOJ rarely brings Title III cases — which produces the recurring political backlash against 'drive-by lawsuits' but reflects a structural underfunding of public enforcement. Reform options: substantial increases in DOJ Civil Rights Division disability-rights capacity, statutory updates clarifying ADA application to digital infrastructure (a 2024 DOJ rule began this work), and tighter enforcement of remedy timelines so settlements actually produce accessibility rather than indefinite plans.
Home and Community-Based Services
Why so many disabled Americans wait years for services they have a federal right to.
Medicaid Home and Community-Based Services are the primary alternative to institutionalization for disabled Americans (and increasingly for older Americans needing long-term care). HCBS includes personal care attendants, home health, respite care, supported employment, and adaptive equipment that enable people to live in their own homes and communities rather than nursing homes or institutions. The 1999 Supreme Court ruling in Olmstead v. L.C. established that unjustified institutionalization is discrimination under ADA Title II — but states retain substantial discretion over the scope and funding of HCBS programs. The result: waiting lists exceeding 700,000 people across 38 states, with waits of five to ten years or more in many states. The cause is inadequate state funding, low Medicaid reimbursement rates that produce direct-care worker shortages, and the structural pattern in which institutional care has historical funding precedence over community-based alternatives. Reform options: federal HCBS funding with conditions (the Build Back Better framework included substantial HCBS investment that did not survive Senate negotiations), federal direct-care worker wage floors, mandatory HCBS rate-setting parity with institutional rates, and expanded mandatory Medicaid HCBS coverage.
Subminimum wage
Why section 14(c) of the FLSA still allows below-minimum-wage payment to disabled workers.
Section 14(c) of the Fair Labor Standards Act, enacted in 1938, authorizes the Secretary of Labor to issue certificates allowing employment of workers with disabilities at rates below the federal minimum wage. The original premise — that some disabled workers might otherwise not be employed at all — has been thoroughly contested by disability advocates and recent empirical work, which finds the framework concentrates disabled workers in segregated workshop settings (often called 'sheltered workshops') at very low wages, with limited transitions to competitive employment. The Transformation to Competitive Integrated Employment Act would phase out 14(c) certificates over a transition period while expanding supported-employment funding. Several states have already eliminated subminimum-wage authority for disabled workers (Maine, New Hampshire, Maryland, Vermont, others); others have set phase-out timelines. The federal phase-out has had bipartisan technical support but has not yet been enacted. The political constraint is partly the workshop network's institutional defense of the existing model and partly federal legislative bandwidth competing with other priorities.
SSI and SSDI
How disability income programs effectively prohibit savings, marriage, and meaningful employment.
Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) are the primary federal income programs for disabled Americans. Both have structural problems. SSI's asset limits — $2,000 for individuals and $3,000 for couples — have been frozen since 1989; adjusted for inflation, they are equivalent to roughly $1,000 in 1989 dollars. The limits effectively prohibit emergency savings, retirement planning, and durable assets. The marriage penalty (combined-asset limits for couples) creates structural disincentives to marriage. SSDI's work-incentive provisions — Trial Work Periods, Substantial Gainful Activity thresholds, Continuing Disability Reviews — are documented as functioning poorly in practice, with beneficiaries reporting they avoid work attempts because of administrative complexity and benefit-loss risk. The SSI Restoration Act and similar proposals would update asset limits, eliminate marriage penalties, and reform earned-income disregards. Reforms have had bipartisan support in principle for years; they have not advanced through enactment. Administrative reform — Social Security Administration staffing, processing time reductions, and front-line case management — is a parallel track that doesn't require statutory change.
Accessibility
Where the law's reach has, and hasn't, kept up with the world.
The ADA was enacted in 1990, before the consumer internet, before smartphones, before most of what we now consider routine digital infrastructure. The law's text has been read by courts and DOJ to apply to digital accessibility — but the application has been uneven, with circuit splits on whether websites unaffiliated with physical places of public accommodation are covered, and what specific standards (WCAG levels, etc.) constitute compliance. The 2024 DOJ rule on Title II digital accessibility (state and local governments) was a substantial step toward clarity. Title III digital accessibility regulation remains pending. Beyond digital, accessibility gaps remain widespread in transit (paratransit chronically underfunded), housing (visitability standards rarely required in new construction), polling places (most states have ongoing accessibility issues for voters with disabilities), and healthcare (medical equipment is often inaccessible, exam rooms inaccessible, language access for deaf patients spotty). Reform: federal standards setting (with adequate transition periods), public investment in accessibility upgrades for public infrastructure, and enforcement capacity to make the standards meaningful.
Legislation
Key bills to watch
| Bill | What it does | Status |
|---|---|---|
| Better Care Better Jobs Act federal | Substantial expansion of Medicaid HCBS funding, direct-care worker wage standards, mandatory state HCBS plans, waiting-list reduction targets. | Reintroduced; not enacted |
| Transformation to Competitive Integrated Employment Act federal | Phases out section 14(c) subminimum wage certificates over a transition period; expands supported-employment funding. | Reintroduced; bipartisan support; not advanced to floor |
| SSI Restoration Act federal | Updates SSI asset limits ($10K individuals, $20K couples), eliminates marriage penalty, increases earned-income disregards, raises monthly benefit floor. | Reintroduced; not advanced |
| ADA Amendments Restoration Act federal | Targeted updates to address judicial narrowings of ADA Title I; clarifies coverage for episodic conditions and mitigated impairments. | Various proposals; partial 2008 enactment |
| Disability Integration Act federal | Codifies Olmstead's integration mandate in federal statute; expands enforcement tools. | Reintroduced; not advanced |
| DOJ Title II digital accessibility rule federal | Final rule (2024) setting WCAG 2.1 Level AA as the standard for state and local government digital accessibility, with phased compliance. | Final rule effective; compliance phasing in 2026-27 |
| State subminimum-wage phase-outs state | Several states (ME, NH, MD, VT, others) have eliminated subminimum wage authority for disabled workers. | Active in multiple states |
Who's affected
Who carries the cost, who reaps the benefit
Disability policy affects the roughly 60 million Americans with disabilities directly, plus their families, caregivers, and the broader systems that intersect with their lives.
HCBS waiting lists fall heaviest on people with the most significant support needs — people with intellectual and developmental disabilities, people with significant physical disabilities, and people aging into long-term care needs. The wait can mean a decade in inappropriate settings or carrying full caregiving responsibility within a family without adequate support.
Subminimum wage authority concentrates harm in the workshop network — primarily affecting people with intellectual and developmental disabilities, who have been historically channeled into segregated employment with limited transitions to competitive work. The economic harm compounds across a working life.
SSI's asset-limit and marriage-penalty rules fall heaviest on disabled people of working age who would otherwise build savings, marry, or own modest assets. The structural disincentives have produced a federal income program that prevents the kind of life-building most other Americans take for granted.
Direct care workers — disproportionately women, immigrants, and people of color — bear the labor cost of an HCBS system funded inadequately to pay competitive wages. Turnover, burnout, and shortages cascade back to the disabled people relying on services.
Family caregivers — informal, unpaid labor — fill gaps the formal system doesn't cover. The economic and health costs to family caregivers are substantial and largely uncompensated.
Voters with disabilities face accessibility barriers that have measurable turnout effects. Patients with disabilities face medical equipment, communication, and clinical interaction barriers that produce documented health outcome gaps.
The benefits of underinvesting in disability infrastructure flow to states with reduced HCBS spending, employers using subminimum-wage labor, and the political ecosystem that benefits from a disabled population structurally constrained from full participation in economic and political life.
Timeline
How we got here
- Social Security Act passes; establishes early federal income protection for blind and elderly Americans.
- Fair Labor Standards Act passes, including section 14(c) authorizing subminimum wages for disabled workers.
- Supplemental Security Income (SSI) program created.
- Rehabilitation Act passes, including Section 504 (federal-funding-conditioned non-discrimination).
- Education for All Handicapped Children Act (now IDEA) requires public schools to serve students with disabilities.
- SSI asset limits last updated ($2,000 individuals, $3,000 couples). Frozen since.
- Americans with Disabilities Act passes.
- Olmstead v. L.C. establishes federal right to receive services in the most integrated setting appropriate.
- ADA Amendments Act restores protections narrowed by 1999-2002 Supreme Court rulings.
- Workforce Innovation and Opportunity Act includes provisions limiting subminimum wage for youth with disabilities.
- Build Back Better framework includes substantial HCBS investment; not enacted in final IRA.
- DOJ final rule on Title II digital accessibility (state and local government).
- Continued state-level subminimum-wage phase-outs; HCBS waiting list pressure persists; SSI Restoration Act reintroduced.
Glossary
Plain-language definitions
- ADA
- Americans with Disabilities Act of 1990. Federal civil rights law prohibiting disability-based discrimination in employment (Title I), state and local government (Title II), and public accommodations (Title III). The 2008 ADA Amendments Act restored protections narrowed by Supreme Court rulings.
- Olmstead
- 1999 Supreme Court ruling (Olmstead v. L.C.) holding that unjustified institutionalization of people with disabilities is discrimination under ADA Title II; established federal right to services in the most integrated setting appropriate.
- HCBS (Home and Community-Based Services)
- Medicaid services that allow people with disabilities and seniors to live in their own homes and communities rather than institutions. Includes personal care, home health, supported employment, and adaptive equipment.
- Section 14(c)
- Provision of the Fair Labor Standards Act allowing the Secretary of Labor to issue certificates authorizing payment of below-minimum-wage rates to workers with disabilities. Subject to ongoing federal phase-out efforts.
- SSI (Supplemental Security Income)
- Federal income program for disabled, blind, and elderly people with low incomes. Asset limit ($2,000 for individuals) frozen since 1989.
- SSDI (Social Security Disability Insurance)
- Federal disability insurance program for workers who have paid into Social Security. Different eligibility from SSI; benefits typically higher.
- Direct care workforce
- Personal care attendants, home health aides, nursing assistants, and similar workers providing direct services. Among the lowest-paid major US occupations; chronic shortages constrain HCBS access.
- Visitability
- Building design standard ensuring a home is accessible to a person using a wheelchair (zero-step entrance, wide doorways, accessible bathroom). Required for new federally funded housing; rarely required in market-rate construction.
- Reasonable accommodation
- ADA-required workplace adjustment enabling a qualified individual with a disability to perform essential job functions. Subject to undue-hardship limit.
- Sheltered workshop
- Segregated employment setting historically operated under section 14(c) certificates, paying disabled workers below the federal minimum wage. Subject to ongoing phase-out efforts.
Research
Briefs on this issue
Brief
Why 700,000 disabled Americans wait years for services they have a federal right to
The Home and Community-Based Services waiting list crisis, the policy choices that created it, and what reform would do.
Brief
Phasing out the disability subminimum wage
Why section 14(c) of the Fair Labor Standards Act still allows below-minimum-wage payment to disabled workers, and what reform actually does.
Engage
What you can do
Letters
- To a US Senator: support the Better Care Better Jobs Act Substantial federal HCBS investment to address the 700,000-person waiting list and direct-care worker wage crisis.
- To a US Senator: phase out the disability subminimum wage (TCIE Act) Section 14(c) of the Fair Labor Standards Act still allows below-minimum-wage payment to disabled workers. Phase-out has had bipartisan support; legislative bandwidth has been the missing variable.
Actions
- Support the Better Care Better Jobs Act Substantial federal HCBS investment to address the 700,000-person waiting list and direct-care worker wage crisis. Open the letter generator →
- Support the Transformation to Competitive Integrated Employment Act Phase out the disability subminimum wage. Bipartisan support in principle; legislative bandwidth has been the missing variable. Open the letter generator →